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Pedro’s Story – MedPal–CNN App | Pediatric Palliative Care Tool

La historia de Pedro

Pedro tiene un año y 5 meses de edad. A su corta edad, Pedro nos ha enseñado mucho a todos quienes hemos tenido el privilegio de conocerle. Tiene un diagnóstico complejo: Atrofia Espinal tipo I. Necesita el uso de tecnología para respirar y para alimentarse. Ha sido hospitalizado varias veces y ha tenido muchas complicaciones. Cuando cuidamos de Pedro, sentimos una paz infinita; es un guerrero que ha salido adelante de las adversidades que su enfermedad le ha impuesto. Tiene una familia maravillosa; sus padres, sus hermanos, sus abuelos, parientes y amigos entienden y conocen mejor que nadie las necesidades especiales de cuidado que Pedro requiere. Cada día con Pedro y su familia nos acordamos de la importancia de los cuidados paliativos y, sobre todo, aprendemos el verdadero significado de amor infinito.